Life in Flashes
 

Advocacy news

To watch my Rising Voices Presentation please click here.

Interview with Tom "The Sleep Guy" in the "Sleep Dose" podcast about symptoms and overcoming the challenges of living with narcolepsy. 

 

I feel privileged and unbelievably thankful to share with you all that I was invited to join the World Narcolepsy Committee (2020).

Amazing experience!

 

 

World Narcolepsy Day 2020 will take place on Sept. 22, 2020. This day is dedicated to raising awareness of narcolepsy on a global scale.

Established by 24 patient advocacy organizations across 6 continents in 2019, World Narcolepsy Day unites the international narcolepsy community to inspire action, increase public knowledge, and elevate the voices of the 3 million people living with narcolepsy worldwide.

Get involved and use the hashtag #WorldNarcolepsyDay.

 

I'm so pleased to announce that I have been invited to participate in this year's Rising Voices of Narcolepsy Writing Program! 

A program that serves the dual purposes, through speaking and writing, of fostering a new generation of narcolepsy patient-advocates spreading awareness while also empowering participants. 

 

If you would like to know more about the Program please find more in information either in my Blog post "Whispers of Life" or by visiting Project Sleep's page here. 

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